Conditions and Diseases

Provides information about CHARGE syndrome, related disorders, therapies and outcome.

Parent's personal account of her child's illness and surgery. Includes links, diagrams and information about the condition and the Norwood surgery.

Dedicated to a child who had surgery for congenital disease.

Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities.

Article on the prevalence, causes and history of overweight in children.

Overview from KidsHealth.org.

Facts and bulletins, treatment information, services available and membership application.

Memorial site for 14 year old Gazal who passed away from a brain tumour on February 11, 1999. Features family photographs, her favorite joke, tributes from her classmates, and poetry.

Journal in memory of Tyler who lost his battle with adult glioblastoma multiforme, stage IV cancer. [October 31, 1998 - August 26, 2005]

Story of little girl's diagnosis and treatment for an ependymoma brain tumor. Includes timeline, pictures and links to additional information for parents.

Discussion group for parents and family members of childhood/adolescent cancer survivors to share ideas, information and support.

UK parent support group providing information and resources on coping with Vein of Galen malformation.

National US charity. Offers research, tips for prevention, support for families, publications, and events.

Article discussing research finding that nicotine not only disrupts a baby's breathing, but can also disrupt the early development of neural circuits that guard against breathing cessation during sleep.

Affiliate of First Candle. Offer bereavement support and information to families affected by SIDS in Iowa.

A non-profit support organization to help those affected by the sudden death of an infant in Kansas. Advice, support meetings, information about SIDS, and links.