Health

A website for teens who have Chiari Malformation and Syringomyelia.

Support group list for parents, families and caregivers of children with the disorder.

An e-mail based support group for families of children with this disease.

Information from the National Institute of Neurological Disorders and Stroke.

Answers to frequently asked questions, for discussion purposes.

Provides details of symptoms, causes, diagnosis, treatment and complications.

A journal detailing the effects of LBD on a mother and how her family cares for her.

Clinically-oriented information.

News,interviews with patients, care-partners, and treatment information.

Information site with lifestyle suggestions,computer advice, and news on MS.

National nonprofit dedicated to curing Multiple Sclerosis by determining its causes.

Provides networking, research and other services to health professionals.

Interested in the non-medical aspects, addressing such social problems as education, employment, insurance, driving license restrictions and public awareness. Includes activities, publications and links.

International organization founded in 1909 to advance and disseminate knowledge about epilepsy, to promote research, education and training and to improve services and care for patients.

A genetic disorder which results in seizures and developmental delays. Personal account of a journey from the first seizure to diagnosis in twin boys.

Chronicles the journey of Karla Brown as she walks 9000 miles across America to raise awareness of epilepsy.

Accounts a parents' experiences with their daughter through diagnosis and treatments during her first two years.

Provides diagnostic services and information to caring physicians and families of CJD patients and supports a research program into the cause of CJD.

Information and support.

Information from the Organic Consumers' Association related to mad cow/deer/pig/elk disease in the USA.

CJD information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Substantive information regarding CJD from the Texas Department of State Health Services.

Information for doctors and families. Research, activities and groups.

Elijah has angelman syndrome and this is a weblog about him written by his Dad.

Follow the life of Maggie who was diagnosed in 2004 with angelman syndrome, a rare genetic disease. Includes details about AS, and a weblog.

Definition, treatments, prognosis, and research information.

Information about the organization which promotes medical and patient education about movement disorders. Includes a newsletter, publications, definitions and links.

Provides information, support and services to people with essential tremor. Funds research into the causes and cure for ET.

Clinical features, genetics, and a comment on possible presence outside Finland.

Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.

Clinically-oriented information.

Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.

A support group for children and teenagers with Reflex Sympathetic Dystrophy. Includes a message board, chat room and a writers corner.

Offers information, support by providing a daily digest, message boards, chat rooms, media campaign and RSD database.

Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.

Information sheet compiled by National Institute of Neurological Disorders and Stroke.

Clinically-oriented information.

Find an introduction, clinical aspects, differentials, treatments, and photographs.

Provides information on this neurodegenerative disease. Includes a short video with a patient's story and details of symptoms, causes, diagnosis and treatment.

US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.

A discussion and support network for those affected by the syndrome.

MEPS is a 501c3 non-profit dedicated to improving the quality of life of Maine people with Parkinson’s disease. Find news, events, and projects.

Clinical trials corporation that specializes in neurological diseases.

Clinically-oriented information.

Provides information on this genetic disorder that affects the nervous system and the skin. Includes details of symptoms, causes, diagnosis, treatment and complications.

Provision of information, treatment, support and links related to Peripheral Neuropathy. Aims to increase research focus and funding of this disease.)

Connie's story with information and links.

Includes summary of latest research on symptoms, causes, and treatments. Source for the book "Arachnoiditis: The Silent Epidemic".

Provides information on this condition, the degree of disability consequent on damage to different regions of the spine and the assistance devices available.

Connecticut-based center, founded to increase awareness of stroke, deliver coordinated therapy, and develop new modalities for care. Certified as a Primary Stroke Center by the Joint Commission on Accreditation of Healthcare Organizations.